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Tom Kindlon
Tom Kindlon
@tomkindlon@disabled.social  ·  activity timestamp last month

"Reimagining You: Finding identity, meaning, and purpose when life doesn’t look the way it used to"

https://onelifelivedwell.substack.com/p/reimagining-you

Blog post by a sympathetic and knowledgeable occupational therapist who specialises in ME/CFS and long Covid.

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 @mecfs
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #chronicillness #ChronicIllnesses #Spoonies #Spoonie #ChronicallyIll #Fibromyalgia #Fibro #FMS #FM #POTS @pots

Reimagining You

Finding identity, meaning, and purpose when life doesn’t look the way it used to.

“Loss of function.” It’s a phrase that feels clinical and detached, but anyone living with chronic illness, post-viral fatigue, cognitive changes, or sudden physical limitations knows that phrase barely scratches the surface. It doesn’t convey the ripple of loss that stretches far beyond the body and reaches deep into the parts of yourself that used to feel familiar and essential.

When you can’t cook your favorite meals, drive yourself to work, shower independently, hold your child, or focus on a task, it isn’t just about energy.
Reimagining You Finding identity, meaning, and purpose when life doesn’t look the way it used to. “Loss of function.” It’s a phrase that feels clinical and detached, but anyone living with chronic illness, post-viral fatigue, cognitive changes, or sudden physical limitations knows that phrase barely scratches the surface. It doesn’t convey the ripple of loss that stretches far beyond the body and reaches deep into the parts of yourself that used to feel familiar and essential. When you can’t cook your favorite meals, drive yourself to work, shower independently, hold your child, or focus on a task, it isn’t just about energy.
Reimagining You Finding identity, meaning, and purpose when life doesn’t look the way it used to. “Loss of function.” It’s a phrase that feels clinical and detached, but anyone living with chronic illness, post-viral fatigue, cognitive changes, or sudden physical limitations knows that phrase barely scratches the surface. It doesn’t convey the ripple of loss that stretches far beyond the body and reaches deep into the parts of yourself that used to feel familiar and essential. When you can’t cook your favorite meals, drive yourself to work, shower independently, hold your child, or focus on a task, it isn’t just about energy.

Reimagining You

Finding identity, meaning, and purpose when life doesn’t look the way it used to.
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Alexis Bushnell
Alexis Bushnell
@alexisbushnell@toot.wales  ·  activity timestamp yesterday

Dear brain fog,
I do not have time for you today.

Yours,
Chronically ill and refusing to change her life to reflect that.

#ChronicIllness #LongCovid #Fibro

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Alexis Bushnell
Alexis Bushnell
@alexisbushnell@toot.wales  ·  activity timestamp 3 days ago

does anyone in South Wales / VoG know what the situation is with GPs prescribing fitness stuff?

I'm pondering swimming to rebuild muscle strength and reduce the hypermobility pain, but wondering if it's worth me mentioning to the GP tomorrow in case they can prescribe sessions for me?

Alexis Bushnell
Alexis Bushnell
@alexisbushnell@toot.wales replied  ·  activity timestamp 2 days ago

Staring down a Fibro/long covid based on most bloods coming back fine.
Possibly hormonal fuckery going on but they are weird results. He is referring me.

Iron level is 25 (normal range is 15 to 300.)
Oestrogen lower than the lab can count.
LH & FSH normal (with low oestrogen they should go up...)

I am... every single emotion and don't really know what to do with this information.

#LongCovid #Fibro #Menopause

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BT Free is a non-profit organization founded by @ozoned@btfree.social . It's goal is for digital privacy rights, advocacy and consulting. This goal will be attained by hosting open platforms to allow others to seamlessly join the Fediverse on moderated instances or by helping others join the Fediverse.

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