I might need some advice. A few days ago I had pain in my tummy under my bellybutton. I didn’t think much of it. Thought I had come down with something. But today the pain transferred to my bowel. Like the inside of my butt is cramping and it HURTS. I have never had this before. I have sensitive bowels. Probably IBS. But never like this. What do I do to make the pain stop? #IBS #Chronicillness #ChronicPain #disabled
Su_G
and 1 other
boosted
Diary comics thread for hourly comics day ✏️ intro/9am
[read together in one place here https://www.patreon.com/posts/150040198 ]
#hourlycomicday #hourlycomicday2026 #MEcfs #pwME #ChronicIllness
4 media
Diary comics thread for hourly comics day ✏️ intro/9am
[read together in one place here https://www.patreon.com/posts/150040198 ]
#hourlycomicday #hourlycomicday2026 #MEcfs #pwME #ChronicIllness
4 media
Serenityfreaksout
boosted
"Reimagining You: Finding identity, meaning, and purpose when life doesn’t look the way it used to"
https://onelifelivedwell.substack.com/p/reimagining-you
Blog post by a sympathetic and knowledgeable occupational therapist who specialises in ME/CFS and long Covid.
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 @mecfs
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #chronicillness #ChronicIllnesses #Spoonies #Spoonie #ChronicallyIll #Fibromyalgia #Fibro #FMS #FM #POTS @pots
Dear brain fog,
I do not have time for you today.
Yours,
Chronically ill and refusing to change her life to reflect that.
Su_G
boosted
Perhaps the most frustrating thing about having a chronic energy limiting disability is other people's ignorance about chronic energy limiting disabilities.
Every time your self preserving actions, inability to do something, requests for accommodations, skeptical attitudes, or apathy towards my situation occur it diminishes my ability to do things. I'd absolutely be able to do more if everyone else either had a little compassion or would just fuck off alltogether.
#MEcfs #ME #MyalgicEncephalomyelitis #ChronicDisability #ChronicIllness
Perhaps the most frustrating thing about having a chronic energy limiting disability is other people's ignorance about chronic energy limiting disabilities.
Every time your self preserving actions, inability to do something, requests for accommodations, skeptical attitudes, or apathy towards my situation occur it diminishes my ability to do things. I'd absolutely be able to do more if everyone else either had a little compassion or would just fuck off alltogether.
#MEcfs #ME #MyalgicEncephalomyelitis #ChronicDisability #ChronicIllness
Roknrol
boosted
On living with lower libido, due to mental health & trauma, perimenopause, HRT & ageing, chronic illness and identity shifts.
#LifeUnscripted #LowLibido #Perimenopause #Midlife #MentalHealth #TraumaRecovery #ChronicIllness #IdentityShift #LifeWriting #PersonalEssays #LivedExperience #HealingJourney #WomensHealth #HormoneHealth #SelfReflection #MidlifeJourney #QuietRevolution #EmotionalWellbeing #WritingLife
https://carasutra.com/2026/01/living-with-low-libido/
On living with lower libido, due to mental health & trauma, perimenopause, HRT & ageing, chronic illness and identity shifts.
#LifeUnscripted #LowLibido #Perimenopause #Midlife #MentalHealth #TraumaRecovery #ChronicIllness #IdentityShift #LifeWriting #PersonalEssays #LivedExperience #HealingJourney #WomensHealth #HormoneHealth #SelfReflection #MidlifeJourney #QuietRevolution #EmotionalWellbeing #WritingLife
https://carasutra.com/2026/01/living-with-low-libido/
Roknrol
boosted
Lately, I've felt like someone stole my whole silverware drawer and all I have left is a broken, plastic spork.
Lately, I've felt like someone stole my whole silverware drawer and all I have left is a broken, plastic spork.
My other half has #MyalgicEncephalomyelitis a #chronicillness that is slowly killing her. It has no known cure.
She asked our doctor how to go about going on long-term sick. Our doctor said that they are loathe to prescribe sick notes for ME patients as they have to “work through their fatigue”.
This has been proven to not be the correct way to assist ME patients in the UK and has been proven to accelerate their condition.
How do i support my other half by bringing anger, facts and data to the next doctor’s meeting? I shouldn’t have to educate doctors, and she is too sick to do it herself.
Business Channel
boosted
Starting the week off by "eating the frog" and it was a massive one...
2.5 hours clicking plus online chat with a Meta agent to try & get any Instagram account restrictions lifted 🙄
My profile is "clean" & SFW now, so fingers crossed. Took so much brain energy. I have a case reference & it's been escalated.
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#SocialMedia #Marketing #Meta #Instagram #Shadowbanned #ShadowBanning #censorship #chronicillness #fatigue #InvisibleIllness #MECFS #EatTheFrog
Starting the week off by "eating the frog" and it was a massive one...
2.5 hours clicking plus online chat with a Meta agent to try & get any Instagram account restrictions lifted 🙄
My profile is "clean" & SFW now, so fingers crossed. Took so much brain energy. I have a case reference & it's been escalated.
---------------------------------------
#SocialMedia #Marketing #Meta #Instagram #Shadowbanned #ShadowBanning #censorship #chronicillness #fatigue #InvisibleIllness #MECFS #EatTheFrog