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@tomkindlon@disabled.social · 11 hours ago

In case you missed this big, exciting news:

Germany Declares 'National Decade Against Post-Infectious Diseases'

https://www-bmftr-bund-de.translate.goog/SharedDocs/Kurzmeldungen/DE/2025/11/nationale-dekade-postinfekti%C3%B6se-erkrankungen.html?utm_source=newsletter&utm_medium=email&utm_campaign=february-2026-newsletter&_x_tr_sl=de&_x_tr_tl=en&_x_tr_hl=en-US&_x_tr_pto=wapp

From February 2026 Massachusetts ME/CFS & FM Association newsletter

https://massme.monkeypod.io/mailcoach/webview/campaign/05601954-e0f2-44eb-af44-5aca96c2b253

#MEcfs @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs

Germany Declares 'National Decade Against Post-Infectious Diseases'

The German government has launched a ten-year initiative to find the underlying biological mechanisms and effective treatments for post-infective diseases. The 'National Decade Against Post-Infectious Diseases' initiative commits 500 million Euros over ten years ($540 million) and will specifically focus on ME/CFS. Federal Research Minister Dorothee Bär, in announcing the strategy, noted that "The need for research is enormous: for ME/CFS and post-viral autoimmune diseases there are still no simple solutions or therapies, and previous studies demonstrate the complexity of the disease mechanisms." — Germany Declares 'National Decade Against Post-Infectious Diseases' The German government has launched a ten-year initiative to find the underlying biological mechanisms and effective treatments for post-infective diseases. The 'National Decade Against Post-Infectious Diseases' initiative commits 500 million Euros over ten years ($540 million) and will specifically focus on ME/CFS. Federal Research Minister Dorothee Bär, in announcing the strategy, noted that "The need for research is enormous: for ME/CFS and post-viral autoimmune diseases there are still no simple solutions or therapies, and previous studies demonstrate the complexity of the disease mechanisms."

https://massme.monkeypod.io/mailcoach/webview/campaign/05601954-e0f2-44eb-af44-5aca96c2b253

Bundesministerium für Forschung, Technologie und Raumfahrt - BMFTR

Nationale Dekade gegen Postinfektiöse Erkrankungen: Insgesamt eine halbe Milliarde Euro für weitergehende Forschung - BMFTR

Nationale Dekade gegen Postinfektiöse Erkrankungen: 500 Millionen Euro für Forschung

Serenityfreaksout boosted

@tomkindlon@disabled.social · last month

"Reimagining You: Finding identity, meaning, and purpose when life doesn’t look the way it used to"

https://onelifelivedwell.substack.com/p/reimagining-you

Blog post by a sympathetic and knowledgeable occupational therapist who specialises in ME/CFS and long Covid.

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 @mecfs
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #chronicillness #ChronicIllnesses #Spoonies #Spoonie #ChronicallyIll #Fibromyalgia #Fibro #FMS #FM #POTS @pots

Reimagining You

Finding identity, meaning, and purpose when life doesn’t look the way it used to.

“Loss of function.” It’s a phrase that feels clinical and detached, but anyone living with chronic illness, post-viral fatigue, cognitive changes, or sudden physical limitations knows that phrase barely scratches the surface. It doesn’t convey the ripple of loss that stretches far beyond the body and reaches deep into the parts of yourself that used to feel familiar and essential.

When you can’t cook your favorite meals, drive yourself to work, shower independently, hold your child, or focus on a task, it isn’t just about energy. — Reimagining You Finding identity, meaning, and purpose when life doesn’t look the way it used to. “Loss of function.” It’s a phrase that feels clinical and detached, but anyone living with chronic illness, post-viral fatigue, cognitive changes, or sudden physical limitations knows that phrase barely scratches the surface. It doesn’t convey the ripple of loss that stretches far beyond the body and reaches deep into the parts of yourself that used to feel familiar and essential. When you can’t cook your favorite meals, drive yourself to work, shower independently, hold your child, or focus on a task, it isn’t just about energy.

Reimagining You

Finding identity, meaning, and purpose when life doesn’t look the way it used to.

Eowyn boosted

@tomkindlon@disabled.social · 7 days ago

Living with #MECFS

All of these things can be out of reach, or close to, for some #MyalgicEncephalomyelitis patients. Some will be able to attain some of these things at certain points during their illness.

From Lu Baker Art https://instagram.com/lubakerart
(repeat)

#CFS #PwME #ChronicFatigueSyndrome @mecfs

[Image: A black and white illustration of a sick person in bed. The bedside table is covered in meds and sick stuff. The person in bed is reaching for the shelves above them which are out of reach. The top shelf has a jar and a box on it which are labelled: Plans, Hopes & Dreams. The second shelf has Fitness, Kids, and Career on it. The third shelf has Get Dressed, Eat, and Shower on it. Via Lu Baker Art. Link in comments ]

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@tomkindlon@disabled.social · 7 days ago

Living with #MECFS

All of these things can be out of reach, or close to, for some #MyalgicEncephalomyelitis patients. Some will be able to attain some of these things at certain points during their illness.

From Lu Baker Art https://instagram.com/lubakerart
(repeat)

#CFS #PwME #ChronicFatigueSyndrome @mecfs

[Image: A black and white illustration of a sick person in bed. The bedside table is covered in meds and sick stuff. The person in bed is reaching for the shelves above them which are out of reach. The top shelf has a jar and a box on it which are labelled: Plans, Hopes & Dreams. The second shelf has Fitness, Kids, and Career on it. The third shelf has Get Dressed, Eat, and Shower on it. Via Lu Baker Art. Link in comments ]

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