Years of scapegoating rhetoric & politicians casting #disabled people as “scroungers” have reinforced prejudices about the blue badge parking scheme & led to “envy & resentment” instead of equal access, according to a 4-year research project

https://www.disabilitynewsservice.com/years-of-scapegoating-rhetoric-has-led-to-envy-and-resentment-of-those-with-blue-badges-research-finds/

#chronicillness #hiddenillness #invisibleillness #Spoonies #Hiddendisability #Hiddendisabilities @mecfs
#MEcfs #CFS #PwME @longcovid
#LongCovid #PosturalOrthostaticTachycardiaSyndrome #POTS @pots

Years of scapegoating rhetoric & politicians casting #disabled people as “scroungers” have reinforced prejudices about the blue badge parking scheme & led to “envy & resentment” instead of equal access, according to a 4-year research project

https://www.disabilitynewsservice.com/years-of-scapegoating-rhetoric-has-led-to-envy-and-resentment-of-those-with-blue-badges-research-finds/

#chronicillness #hiddenillness #invisibleillness #Spoonies #Hiddendisability #Hiddendisabilities @mecfs
#MEcfs #CFS #PwME @longcovid
#LongCovid #PosturalOrthostaticTachycardiaSyndrome #POTS @pots

@qwertziop Wenn die Erkrankung dort nicht bekannt ist, unbedingt darum bitten folgendes zu lesen und zu berücksichtigen.

https://www.mecfs.de/was-ist-me-cfs/

#mecfs #pwme

Ich werde im Februar wg. Post Covid eine Reha antreten.

Ich bin trotz Wunschklinik, dies das, in einer psychosomatischen Klinik im Schwarzwald gelandet und werde voraussichtlich 5 Wochen lang aktiviert.

Gibt es Tipps, wie ich das ohne bleibende Schäden überstehe, ohne am Ende den Stempel Totalverweigerer im Bericht stehen zu haben?

[edit: Meine Frage richtet sich primär an Reha-Erfahrene Menschen. Und es gute Gründe die Reha anzutreten.]

#postCovid #mecfs #longCovid

3/

“The functional impairment caused by ME/CFS can be staggering. For many, the illness results in serious disability. It forces withdrawal from the workforce and social isolation. The spectrum of severity is wide. Some individuals maintain a reduced schedule. Others are housebound or bedbound and dependent on caregivers for basic needs.”

@mecfs #mecfs

3/

“The functional impairment caused by ME/CFS can be staggering. For many, the illness results in serious disability. It forces withdrawal from the workforce and social isolation. The spectrum of severity is wide. Some individuals maintain a reduced schedule. Others are housebound or bedbound and dependent on caregivers for basic needs.”

@mecfs #mecfs

2/

“You might think you know what tired feels like. But this is different. Research suggests that encephalomyelitis chronic fatigue syndrome creates a wall. A brick wall. Even simple mental exertion or physical or mental activity hits you hard. It is called post exertional malaise. It feels like your battery is not just empty but broken.”

@mecfs #mecfs

@qwertziop Wenn die Erkrankung dort nicht bekannt ist, unbedingt darum bitten folgendes zu lesen und zu berücksichtigen.

https://www.mecfs.de/was-ist-me-cfs/

#mecfs #pwme

Ich werde im Februar wg. Post Covid eine Reha antreten.

Ich bin trotz Wunschklinik, dies das, in einer psychosomatischen Klinik im Schwarzwald gelandet und werde voraussichtlich 5 Wochen lang aktiviert.

Gibt es Tipps, wie ich das ohne bleibende Schäden überstehe, ohne am Ende den Stempel Totalverweigerer im Bericht stehen zu haben?

[edit: Meine Frage richtet sich primär an Reha-Erfahrene Menschen. Und es gute Gründe die Reha anzutreten.]

#postCovid #mecfs #longCovid

Great to see this sympathetic overview article in the LA Times

https://www.latimes.com/doctors-scientists/medicine/primary-care/story/chronic-fatigue-syndrome-causes-symptoms-risks-management

It's long so many if not most patients probably won't agree with every sentence but overall gets across a lot sympathetically.

Note: it doesn't focus on any particular news

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME